Mito Awareness, Samuel's story and why the dragonfly helps us think of heaven.
Since Samuel went to heaven we can share the joy we have
because of Christ and His gift of salvation. We have great Hope that through
Christ alone we will see our loved ones again. I started looking at the sky
and seeing it differently after Samuel left us for heaven. What awesome
beauty and spectacular glory the Lord shares with us and it helps me to
think how amazing heaven will be. Just a glimpse!
I want to share a little about Samuel and the significance of the
dragonfly to us. Samuel was born healthy and perfect. He was fussy but we
loved him and enjoyed every minute we had with him. As he grew he was not
meeting milestones and over time found out he had a mitochondrial disorder.
There is no cure. He was never able to walk or talk, but he communicated
volumes with his sweet spirit, precious ways and wisdom beyond his years. He
did have an eye gaze computer and several ways to communicate and he was
opinionated and knew how to communicate, just not verbally. Thank you to do
many wonderful therapists over the years who taught us and helped us help
him.
He taught us so much about having joy in all circumstance, trusting the Lord
and finding the joy in each gift, small or large. He loved the Lord and the
peace he had was unexplainable.
It was truly our joy and honor to be his parents and take care of him for
almost 8 years.
Here is a short video that explains what happened with Samuel and mito. It
is still hard to watch but has been a Powerful tool in explaining our story
in a simple way. The mitochondrial foundation even used it to help educate
others over the years. Even if you aren't on Facebook, this is public. *link below his picture
I also have wanted to share for years about the significance of the
dragonfly. To me it's a picture of heaven.
📖The dragonfly is at first a water nymph that lives under the surface of
the water. One day one of the water bugs goes up and disappears. The others
decide that the next one that goes up needs to come back and tell everyone
where they went. Soon the next water bug felt the urge to go to the surface
and took a nap on a lily pad. When the bug awoke he had glorious wings and a
new body! He could fly and see the amazing world! Then he remembered his
friends below the surface and wanted to tell them all about it, but he could
not go back under the water.
The the significance of this story to me, is that we are living like the
water bugs under the surface surviving each day on earth. When someone we
love dies and they are Christians that go to heaven which symbolizes the
dragonfly in his Heavenly Body as we will be enjoying all the beauty of
Heaven. The people in heaven cannot come back and tell us about it so we
must wait until we are called.
✝️This gives me great hope and is a sweet reminder of the joy
awaiting!
I also think often of this verse and have it written permanently on my foot
with Samuel's name and a dragonfly:
Romans 8:18, "For I consider that the sufferings of this present time are
not worth comparing with the glory that is to be revealed to us."
The Glory that is to be revealed to us in heaven! I can't wait. But until
then we must press on for God's glory. And Samuel's life and death are a
precious reminder to serve the Lord with gladness, step heavenly and help
others.
Thank you for reading our story. I hope you know a little more about why we
wear green for mito week, LOVE to talk about our boy and keep raising
awareness so there can be a cure.
Below are some of our favorite people and memories from mito week.
This year
it's Sept 15-21. 💚
💚💙Precious memories with Samuel💙💚
